Noah is still at CHOP and is doing well. He is getting the best care we can ask for. Noah has been diagnosed with an extremely rare sleeping disorder. It is known as Congenital Central Hypoventilation Syndrome. Its a syndrome where he forgets to breathe while he is sleeping. After numerous consultations with many doctors and specialists it has been decided that the best treatment for Noah at this time is a tracheostomy. This should be done within the next week. Recovery will take one to two weeks and the training on our part could take 5-8 weeks and then we should hope to have him home where he belongs with Nico.
We thank all of you for your support, love and prayers.
Wednesday, July 29, 2009
Saturday, July 11, 2009
Saturday, July 4, 2009
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